As leaders of intellectual disability and autism (ID/A) services, we have been raising our voices about the unsustainable staffing/direct support professional (DSP) crisis in our community.
The General Assembly will complete its budget work soon. Dozens of legislative leaders have met with us and have told us they hear the voices of people with ID/A, their families, advocates, provider organizations, and DSPs. All of these Pennsylvanians have been articulate and focused on the danger to the community ID/A system.
Moms like Sandi Shaffer of Westmoreland County, whose daughter Kate cannot communicate verbally, have spoken to legislators. She’s told them how she had to quit her job to care for her daughter, juggling Kate’s care while also supporting her own 88-year-old mother’s needs.
Moms like Cindy Jennings of Lancaster County and Linda Smith of Adams County have been unable to find a DSP for their adult sons. They have assumed those duties full-time, struggling to be there for their sons, who require 24/7/365 assistance.
These parents have lost their livelihoods, sometimes their homes, and given up lives of their own. People with ID/A themselves have lost those who support them every day – DSPs they rely on and care about – the people who help them pursue their dreams.
As service providers, we speak for those who don’t have a voice – some of Pennsylvania’s most vulnerable citizens. We speak for the DSPs who showed up every day throughout the pandemic.
We have spoken to legislators about how we once had dozens of applicants for each DSP job, but now find it impossible to hire enough qualified workers willing to work for the wage funded by the state’s rates for community disability programs. Across PA, that low rate and resulting insufficient wage has led to more than 60% of DSPs leaving their jobs within the first year of employment because they can’t afford to work for such low pay.
We have called out the need to make the DSP crisis a priority of the final budget to be enacted by the General Assembly this June. We are encouraged by the public support this cause has received throughout the Commonwealth. In the last year, almost 170 feature stories, editorials, and op-eds have been published by news outlets drawing attention to this crisis and how this budget could bring stability to this area.
The provider and advocacy community has been united in calling for an infusion of additional state resources to raise DSP wages to stabilize the programs supporting the most vulnerable of Pennsylvanians.
Organizations like ours have urged a variety of policy options for legislators including:
We are deeply appreciative of the response, courtesy, and consideration that members of the General Assembly have given to us. Members of the PA House and Senate – including those in leadership positions in the Republican and Democratic parties, from fiscal conservatives to progressive liberals – have agreed that the ID/A issue is urgent, well understood, and in need of immediate action.
Solutions are on the table in budget negotiations and for that, we extend our thanks to members of the PA legislature, the public, news media, people with ID/A, their family members, DSPs, and all others who have helped raise attention to this crisis to such a level that it is being discussed and addressed by the General Assembly.
We look forward to the outcome of these budget negotiations with hope, optimism, and deep appreciation. The people of the Commonwealth want to know what the General Assembly decides.