Disability Healthcare Initiative Resources

Access to Health Care Resources

PA Department of Health – The Special Kids Network

Americans with Disability Act (ADA): Access To Medical Care For Individuals With Mobility Disabilities

ADA: Communicating with People Who Are Hearing Impaired in Hospital Settings

ADA Update: A Primer for Small Business

Questions are the answers. Better communication. Better care.

The Current State of Healthcare for People with Disabilities, National Council on Disability, Report to President and Congress

American Foundation for the Blind – ADA Checklist: Healthcare Facilities and Services Providers

Healthcare Access for Blind and Visually Impaired People

Advancing Effective Communication, Cultural Competence and Patient and Family Centered Care

Connecting Kids to Coverage – Insure Kids Now

Overcoming Obstacles to Health Care: Transportation Models that Work

Tools for Improving Clinical Preventive Services Receipt Among Women with Disabilities of Childbearing Ages and Beyond

Treat Me Right! Better Healthcare for People with a Learning Disability

Nutrition, Physical Activity and Obesity: Data, Trends and Maps

Medline Plus: http://medlineplus.gov/

Child Dental Health: https://www.nlm.nih.gov/medlineplus/childdentalhealth.html

Dental Health: https://www.nlm.nih.gov/medlineplus/dentalhealth.html

Communication Resources

Sign Language Interpreter Services for Medical Appointments 

ADA: Communicating with People Who Are Hearing Impaired in Hospital Settings

Health Education in American Sign Language

Questions are the answers. Better communication. Better care.

Effective Communication in Hospitals

Cultural Competency Information

Health Education in American Sign Language

Health Information for People who are Deaf, Deaf-Blind or Hard of Hearing

iCanConnect – The national Deaf-Blind Equipment Distribution Program

Archived Webinars on Accessibility

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Treat Me Right! Better Healthcare for People with a Learning Disability

Dental Resources for Individuals with Disabilities

Home care to protect your oral health is important. This video will provide step by step instructions on how to brush your teeth, floss your teeth and take care of your oral health. Instructions are provide by a pediatric dentist and also include extra modifications that can be made for those that might require some assistance in caring for their teeth. https://youtu.be/FRD3rQ2rDts

Finding a dental home that can meet your needs is important. Sometimes patients with special needs will require dentistry that is more involved than just routine care and this dental home might need to be more specialized. The Center for Patients with Special Needs at the University of Pittsburgh School of Dental Medicine is working to train dental students to be able to provide care to patients with disabilities. This video explores the need for sedation dentistry and various types of services that might be involved for someone that requires this level of care to get dental treatment. It also guides families on what to ask a potential provider if they are seeking care in their community. Video was produced by LEND fellow students in the spring of 2016. https://youtu.be/vdw_EwjufE8

NIDCR – Finding Dental Care

Connecting Kids to Coverage at Insure Kids Now

Taking Your Son or Daughter with an Autism Spectrum Disorder (ASD) to the Dentist

Strategies for Successful Dental Office Visits from New York Developmental Disabilities Planning Council

Dental Care Every Day: A Caregiver’s Guide

Accessible Dental Services

Cuidado Dental

NIDCR

MedLine Plus (En Enspanol)

Inicio Dental Atención a las Personas con Discapacidad

Videos

WQED’s OnQ Magazine “Dental and Oral Care: Dental Insurance and Care Assistance Advice”

Dentist to Dentist: Treating People with Disabilities

D-Termined Program of Repetitive Tasking and Familiarization in Dentistry 

Massachusetts Dental Society Presents “Oral Care for People with Special Needs”Home Dental Care for People with Disabilities

Webinars

Dental – Levels of Care and What Kind of Dentist do I Need?

Oral Healthcare for Individuals with Disabilities

Practice Without Pressure

Publications

Medicaid Coverage of Dental Benefits for Adults

Access to Dental Care for People With Disabilities: Challenges and Solutions – A Report to Pennsylvania’s Legislators  

Access to Oral Health Care for Pennsylvanians with Disabilities: A Rising Public-Health Issue

Dental Resources for Professionals

If you are visiting this site, you probably already treat individuals with disabilities, or you are willing to try. We know that most (75 percent) people with disabilities can be seen in a typical dentist’s office. We also know that certain people may require extra support. Below, please find links to information that might help in the dental care of people with disabilities.

Pennsylvania Coalition for Oral Health, Leading Change for Oral Health in Pennsylvania
A diverse group of leaders from across the state from schools or public health, philanthropic organizations, businesses, dental and medical organizations, federally-qualified health centers, health insurance firms, advocacy organizations and other champions that advance policies and practices that increase access to oral health services and prevention education for our most vulnerable Pennsylvanians.  View resources at www.paoralhealth.org.

It is helpful to read the brief “How to Use the Kit” documents first.  Click here for the Tool-Kit.

Medicaid Coverage of Dental Benefits for Adults

Smiles for Life: A National Oral Health Curriculum

NIDCR – Developmental Disabilities and Oral Health

NICDR (NIH) Continuing Education

Cultural Competency Information from the Office of Minority Health

Special Care: An Oral Health Professionals Guide to Servicing Young Children with Special Health Care Needs – National Maternal and Child Oral Health Resource Center

Autism Speaks Dental Tool Kit

University of Washington School of Dentistry Special Needs Fact Sheets for Providers and Caregivers.

Sign Language Interpreter Services for Medical Appointments 

Dental Organizations That Support Individuals with Disabilities

Special Care Dentistry

American Academy of Developmental Medicine and Dentistry

Additional Information and Dental Resources

Access to Dental Care for People With Disabilities: Challenges and Solutions – A Report to Pennsylvania’s Legislators

Access to Oral Health Care for Pennsylvanians with Disabilities: A Rising Public-Health Issue

The National Maternal and Child Oral Health Resource Center (OHRC) has two resources, which were developed to stimulate thinking about providing oral health care for children with special health care needs.

1. Oral Health Services for Children and Adolescents with Special Health Care Needs: Topics include continuing education for professionals, financing of care, disease prevention and early intervention strategies, public education and state and national data and programs. The guide is available at http://www.mchoralhealth.org/PDFs/SHCNResGuide.pdf.

2. Focus on Children with Special Health Care Needs provides a short list of high-quality journal articles, materials and websites focusing on children with special health care needs (CSHCN). The tool also offers automated PubMed and OHRC library search options for finding additional resources. The Resource Highlights are available at http://www.mchoralhealth.org/highlights/index.html.

Healthcare Advocacy Organizations

Pennsylvania Health Law Project (PHLP) http://www.phlp.org/
The PHLP provides free legal services and advocacy to Pennsylvanians having difficulties accessing publicly funded health care coverage or services. Toll Free HelpLine: 1-800-274-3258 TTY: 1-866-236-6310 Email: staff@phlp.org

Disability Rights Pennsylvania (DRP) is a statewide, non–profit corporation designated as the federally mandated organization to advance and protect the civil rights of adults and children with disabilities.

You can contact DRP’s Intake Team to seek advice about disability rights, access to services, abuse, neglect and other issues by calling toll-free 1-800-692-7443 (Voice), 1-877-375-7139 (TDD) or by emailing DRP at disabilityrightspa.org/contact/.

International Society of Wheelchair Professionals (ISWP) was formed in 2014 with the help of a USAID grant. ISWP’s mission is that wheelchair users are provided the best technology with the best service worldwide. The society consists of wheelchair clinicians, technicians, manufacturers, users, and other stakeholders. Please visit the ISWP website for more information: http://www.wheelchairnet.org

The American Academy of Developmental Medicine and Dentistry

Special Care Dentistry Association

iCanConnect – The national Deaf-Blind Equipment Distribution Program

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Blind and Vision Rehabilitation Services of Pittsburgh www.blindvr.org

PA Association of the Blind www.pablind.org

Center for Hearing & Deaf Services http://hdscenter.org/default.asp

Pennsylvania Office for the Deaf and Hard of Hearing (ODHH) Main Office Phone:  717-783-4912 v/tty Main Office Toll-Free (PA Only):  800-233-3008 v/tty

Hearing Loss Association http://www.hla-pa.org/index.htm

Brain Injury Association of Pennsylvania, Inc. www.biapa.org

Paralyzed Veterans of America — This website is not just for veterans. www.pva.org

United Spinal Association (consumer advocacy group) www.unitedspinal.org

The National Spinal Cord Association www.spinalcord.org

Trauma Survivors Network http://www.traumasurvivorsnetwork.org/

University of Pittsburgh Medical Center Resources

1. Center for Assistive Technology As a joint program of UPMC and the University of Pittsburgh, CAT provides innovative solutions for individuals with disabilities who need assistive technology for mobility, hearing, speech, and other everyday needs.

Web: www.upmc.com/cat Phone:  412-647-1310 TTY:  412-647-1322

2. Disabilities Resource Center (DRC) The Disabilities Resource Center was established in 2007 to improve access to health care for people with disabilities. The DRC focuses on four main areas to improve accessibility to health care: education and training for staff; assessing and improving the accessibility of UPMC facilities; policy review; and serving as a resource to the community who experience barriers or otherwise identify opportunities for improvement and serving as an internal resource to UPMC programs and departments.  Phone/TTY:  412-605-1483  Email:  DisabilitiesResource@upmc.edu

3. Center for Women with Disabilities at Magee-Women’s Hospital of UPMC The Center for Women with Disabilities at Magee-Women’s Hospital of UPMC has been delivering state-of-the-art preventive health care to women with disabilities since 2001. One of the first such services in the country, the center was designed in consultation with women with disabilities to meet their needs for accessible, regular exams and screenings.  Web:  http://www.upmc.com/locations/hospitals/Magee/Pages/default.aspx Phone:  412-641-1000

4. UPMC’s Eye Center – Low Vision Service UPMC’s Eye Center diagnoses and treats patients with restricted vision abilities, including varying degrees of vision loss, distorted or blurred vision, night blindness, loss of contrast, sensitivity to light, and others. Following the assessment of a patient’s functional visual ability, the ophthalmologists and other eye care professionals may prescribe visual aids, such as magnifying glasses, filters, and other adaptive equipment to help a patient maintain or regain as much sight as possible.  Web:  http://www.upmc.com/Services/eye/services/Pages/contacts.aspx Phone:  412-647-2200 or (toll-free) 1-800-446-3797.

5. Center for Audiology and Hearing Aids The UPMC Center for Audiology and Hearing Aids performs routine and specialized hearing evaluations and provides treatment for permanent hearing loss, including hearing aids, cochlear implants, and other assistive listening devices.
Web:  http://www.upmc.com/Services/ear-nose-throat/services/audiology/Pages/default.aspx  Phone:  412-647-2030

6. UPMC Rehabilitation Institute http://www.upmc.com/Services/rehab/rehab-institute/ Expert Inpatient Care For a Brighter Outlook on Living – As part of the largest rehabilitation network in western Pennsylvania, the UPMC Rehabilitation Institute offers specialized, inpatient care for a variety of conditions, including: Brain injuriesComplex orthopaedic injuries,  transplant rehabilitation, Multiple traumatic injuries and amputations, Spinal cord injuries and Stroke.

7. UPMC Trauma Resources Families and visitors may have many questions after a traumatic injury.  The resources on these webpage may provide more information for general and detailed information on the traumatic injury or the recovery process. The information here may not apply to the specific patient, but it can give a general idea about what to expect.  http://www.upmc.com/locations/hospitals/presbyterian/services/trauma/Pages/resources.aspx

Healthcare Resources for Women and Girls with Disabilities

Access to Healthcare for Women and Girls with Disabilities – A Report to Pennsylvania’s Legislators

Strategies for Successful Medical Office Visits from New York Developmental Disabilities Planning Council

Patient Provider Communication Forum 

Access to Medical Care for Individuals with Mobility Disabilities

The HealthBridges website offers information about social services, advocacy and behavioral health topics and resources available in Pennsylvania to persons who are deaf, deaf, blind and hard of hearing

Access to Healthcare for Women with Disabilities

Health Care Reform for People with Disabilities (PWD)

CDC Guide: Women with Disabilities

Villanova, Women with Disabilities home page

Center for Research on Women with Disabilities (CROWD)

Women with Disabilities: What You Should Know About Preventative Healthcare

Being a Proactive Patient – Pennsylvania Consumer Health Coalition Committee for People with Disabilities 

Communicating with People Who Are Deaf or Hard of Hearing in Hospital Settings

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Tools for Improving Clinical Preventive Services Receipt Among Women with Disabilities of Childbearing Ages and Beyond

Treat Me Right! Better Healthcare for People with a Learning Disability

Nutrition, Physical Activity and Obesity: Data, Trends and Maps

Guidelines for Health Professionals and their Patients About Getting Adequate Amounts of Physical Activity

Videos

Access to Healthcare for Women and Girls with Disabilities

Women Be Healthy Mammography

Medical Resources for Professionals

A new website — www.iddtoolkit.org — aims to provide primary-care physicians with tools for communicating with and treating patients with intellectual disabilities. View the complete article at http://www.tennessean.com/apps/pbcs.dll/article?AID=/201402020210/NEWS07/302020053.

The American College of Gynecology offers many different topics and training modules on their website

Patient Provider Communication Forum  A national and international effort to promote information sharing, cooperation and collaboration among individuals who are committed to seeking improvements in patient-provider communications.

Communicating with People Who Are Deaf or Hard of Hearing in Hospital Settings

Access to Medical Care for Individuals with Mobility Disabilities

CDC Key Findings: Persons with Disabilities as an Unrecognized Health Disparity Population

CDC Key Findings: Disability Status, Mortality, and Leading Causes of Death in the United States Community Population

Guidelines for Health Professionals and their Patients About Getting Adequate Amounts of Physical Activity

The AADMD would like to encourage the physician community to take part in the Physician Education in Developmental Disabilities (PEDD) continuing medical education curriculum. It is completely free to participate and entirely online. While it is geared toward primary care physicians, hundreds of specialist physicians and non-physicians have found this curriculum to be a valuable training tool as well.  Click here for the series.

Transition from Pediatric to Adult for Youth with Special Healthcare Needs Resources

Brochure: A Guide for Families and Providers: Helping young adults manage healthcare transition

Moving from Pediatric to Adult Primary Healthcare:  Transitioning Youth with PA Medicaid Managed Care, their Families, and their Doctors

Implementation of Specified Requirements for the Transition of Medically Fragile Young Adults from Pediatrics to Adult PCPs

Transition from Pediatrics to Adult Medical System for Young Adults with Disabilities or Special Healthcare Needs

Treat Me Right! Better Healthcare for People with a Learning Disability

Video and Webinar Resources

Videos

Dentist to Dentist: Treating People with Disabilities

Home Dental Care for People with Disabilities with Dr. Brian Martin

Autism Speaks Dental Tool Kit

Massachusetts Dental Society Presents “Oral Care for People with Special Needs”

WQED’s OnQ Magazine “Dental and Oral Care: Dental Insurance and Care Assistance Advice”

Access to Medical Care: Adults with Physical Disabilities (22 minute video and training about key issues that influence the quality of care in outpatient clinical settings)

Access to Medical Care: People with Developmental Disabilities (Addresses health care disparities for people with disabilities)

Disability and Discrimination at the Doctor’s Office

How Can I Help You? Helping people who are blind and visually impaired in the health care setting. Produced by the NH Association for the Blind and Concord Hospital, supported by the NH Hospital Association and partnering with the NH Medical Society and its members.

Serving People who are Deaf in Hospitals This video presents tips and guidelines which are important when providing services to consumers who are deaf.  Two health consumers share their recent hospital experience.

Webinars

Oral Healthcare for Those with Disabilities Good oral health is part of overall wellness but sometimes for children with disabilities good oral hygiene can be a challenge.  ACHIEVA, in partnership with Albert Schweitzer Fellow and University of Pittsburgh School of Dental Medicine graduate, James Lin produced a webinar which provides guidance on oral hygiene and proper dental care. The webinar includes tips and adaptations that may help if you are the caregiver for someone that needs guidance on proper oral care. For additional oral health information you can access www.facebook.com/JamesLinDMD.

Oral Healthcare and Why it Matters

Healthcare Transition Summary

Special Needs Units

Operations Memorandum

Through the Barrier-Free Health Care Initiative

Dental – Levels of Care and What Kind of Dentist do I Need?

Oral Healthcare for Individuals with Disabilities

Practice Without Pressure

Putting Nutrition on Your Radar

Archived Webinars on Accessibility

Transportation Options and Accommodations for Individuals with Disabilities

Wellness for Every Body: Training for Staff Who Support Individuals with Intellectual and Developmental Disabilities

The AADMD would like to encourage the physician community to take part in the Physician Education in Developmental Disabilities (PEDD) continuing medical education curriculum. It is completely free to participate and entirely online. While it is geared toward primary care physicians, hundreds of specialist physicians and non-physicians have found this curriculum to be a valuable training tool as well. Click here for the series.

The Friends of the CDC’s National Center on Birth Defects and Disabilities (NCBDDD) have a webinar, “Preparing People with Disabilities for the Health Insurance Marketplaces: What do you know?  What do you need to know?”  The learning objectives are to enable attendees to: 1) explain recent changes in the Affordable Care Ace (ACA) that affect people with disabilities; 2) describe how the health insurance marketplaces will work; and 3) incorporate health advocacy tips for organizations that serve people with disabilities in the health marketplaces (exchanges) process and other health/ACA-related programs.

Magee-Womens Hospital and the UPMC Disabilities Resource Center are hosting the Women with Disabilities Web Cast Series  For more details, click here.

A new resource added to the website are videos on healthcare transition.  Created by the Parent Education & Advocacy Leadership (PEAL) Center, Pennsylvania’s federally-funded Parent Training and Information Center, this video series highlights the healthcare transition process for youth with special healthcare needs/disabilities transitioning from pediatric to adult healthcare.